Summer Fun

Feeding the chipmonks in Colorado










The last month of summer was filled with fun and bonding. Pamela was offered a great new job that will allow her to utilize her talents and more importantly will be home every night with Lily. She was also able to spend another month bonding with Lily without the almost daily grind of doctor appointments.

Lily and Pamela took their first mother/daughter road trip to the Colorado Rockies to stay with Pamela’s friend Cathy and her little boy, Lucas. The two moms exchanged “mom stories” during their road trip to Estes Park while the kids jabbered, played, and shared treats in the back seat. Lily did great on the flight to and from Denver and entertained her seat mates with her giggles and infectious smile. But she missed her daddy. And he missed her too.




Cathy and Lucas











The weather in Seattle finally warmed up enough to enjoy the summer evenings outdoors. Dad has introduced Lily to blackberries on their nightly walks. By the time they get home Lily is covered in purple juice!



Berry face










We attended John’s annual company picnic where Lily enjoyed the food and rides at the Family Fun Park. Her favorite ride was the bumper boats!














As hard as we tried, we couldn’t get through the rest of summer without more medical issues. Labor Day weekend started and ended with two trips to the emergency room and surgical procedure done in the ER due to infection on Lily’s ear. We have learned that Lily has Preauricular pits, an anomaly resulting from imperfect external ear development. If these “pits” become swollen and infected they need to be surgically removed. Under the advice of the head and neck surgeon and Lily’s cardiologist, Lily will need to undergo an additional surgery later in September. Ugh…

On a positive note, Lily has been transitioning incredibly well into her new daily routine at her Montessori school. She is making new friends and trying new tasks. She took her first step when mommy came to pick her up one day. We’re sorry to say goodbye to summer so soon but we’re looking forward into settling into a routine that will continue to provide Lily with the freedom and consistency that will allow her to develop her sweet personality… and her sense of humor.